This is the 4th, and unfortunately final, update to my saga of requesting records from the CDC regarding the handling of the COVID pandemic. Last Friday, the analyst covering my case quoted me a whopping and exorbitant $976 for the processing of my request and gave me five days (until November 1) to either a)… Continue reading CDC FOIA Update #4
Did I Really Have a Choice to Become Immunocompromised?
This piece will be short with a more venting tone. I'm not editing this much or letting anyone proof it, so it might be a mess. But, stick with me, because I am angry and I need someplace to put this. As I've covered quite extensively in a few previous pieces (like How I Knew… Continue reading Did I Really Have a Choice to Become Immunocompromised?
I’m an Immunocompromised Teen. And I am Angry.
I’m newly 18, I’m immunocompromised, and I am angry. I am angry at the government. I am angry with select family members. I am angry with friends. And, truthfully, I’m furious with the world.
A Disabled Teen’s Short, Early Review of the iOS 16 Medication App
Native medication tracking is a feature I've been looking at and hoping for since I switched to iOS a few years ago. Yeah, third-party apps are great, but I've always wanted it natively, and now I have it in iOS 16 and I LOVE it. It had a DIFFERENT notification noise and it's so simple… Continue reading A Disabled Teen’s Short, Early Review of the iOS 16 Medication App
How I Knew I Had Arthritis, Not “Just Cerebral Palsy”
So, I just threw together a pretty detailed thread answering a few questions posed by someone early on the autoimmunity journey and I wanted to share those here, as well as my response to them! Questions: What do you have? How did you know it wasn't "just" CP? How did you get a doctor to… Continue reading How I Knew I Had Arthritis, Not “Just Cerebral Palsy”
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