The Department of Energy currently has two "direct final rules" that will adversely affect disability rights. One of these rules removes regulations requiring new buildings to be accessible, and the other would remove accessibility requirements for older buildings and alterations to buildings. Further, the rules remove highly-specific language regarding accessibility requirements, called the Uniform Federal… Continue reading Advocacy Alert: Comment by June 16 in Opposition of Department of Energy Accessibility Rule Changes
Category: Disability
HHS Makes Groundbreaking Announcement on Long COVID Definition
I share my thoughts on the National Academies of Sciences, Engineering, and Medicine's new definition of Long COVID.
Transition Maine Summit Recap
I recently spoke at the Maine Department of Education's Transition Maine "I Belong" Youth Summit, delivering a keynote on "A Self-Advocate's Guide to Transition." It was heartwarming to see students and educators engaged and inspired by the possibilities of the future. The event left a lasting impact, and I look forward to their future endeavors.
Letter to Governor Kay Ivey Regarding Medicaid Expansion in Alabama
Today, I sent a letter to Governor Ivey regarding Medicaid expansion in Alabama. I spent over two hours writing this 3-page letter yesterday, including research and implementable solutions to the issue of expansion. I wanted to share it here as well to make my views on the issue public and encourage donations to Alabama Arise,… Continue reading Letter to Governor Kay Ivey Regarding Medicaid Expansion in Alabama
Census Action Alert Update 2
A month ago, I published an action alert due to the Census Bureau's intent to change the definition of disability and the screening questions they use to compile disability data. Today, I'm glad to report that the change has not been adopted, at least not at this point. This is largely due to the pushback… Continue reading Census Action Alert Update 2


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