Action Alert: US Census Disability Definition Proposed Changes

Yesterday, I posted an Action Alert on Twitter about the US Census' intent to modify the definition of disability in a way that provides less complete data. I've pasted it below, and I want to also use this space to outline what the changes are, why they're bad, and what to say if you file… Continue reading Action Alert: US Census Disability Definition Proposed Changes

Archived Twitter Thread: Extra Life Game Day 2022

This is an archive of my 11/05/2022 thread on Extra Life Game Day 2022. The thread can be viewed here. I'm not streaming today for @ExtraLife4Kids gameday because my workload is insurmountable, but I do want to promote my hospital @ChildrensAL for a minute. They saved my life and I have some of the best… Continue reading Archived Twitter Thread: Extra Life Game Day 2022

A Disabled Teen’s Short, Early Review of the iOS 16 Medication App

Native medication tracking is a feature I've been looking at and hoping for since I switched to iOS a few years ago. Yeah, third-party apps are great, but I've always wanted it natively, and now I have it in iOS 16 and I LOVE it. It had a DIFFERENT notification noise and it's so simple… Continue reading A Disabled Teen’s Short, Early Review of the iOS 16 Medication App

How I Knew I Had Arthritis, Not “Just Cerebral Palsy”

So, I just threw together a pretty detailed thread answering a few questions posed by someone early on the autoimmunity journey and I wanted to share those here, as well as my response to them! Questions: What do you have? How did you know it wasn't "just" CP? How did you get a doctor to… Continue reading How I Knew I Had Arthritis, Not “Just Cerebral Palsy”

Archived Twitter Thread: Reflections on April 27, 2011, 11 Years Later

The following is an "unrolled" archive of this Twitter thread. Trigger warning: tornadoes , grief 11 years ago today on April 27, 2011, I was 6 years old. I don't remember much, but I do remember loving the weather. I remember going to school and the TV was on James Spann (@spann). I watched him… Continue reading Archived Twitter Thread: Reflections on April 27, 2011, 11 Years Later